What 515 Alzheimer’s caregivers told us about trust, overwhelm, and who they turn to for help
Insights from a 2025 caregiver study by All About Alzheimer’s
Over the past month, 515 Alzheimer’s caregivers across the US completed a detailed study on:
what makes them trust a professional
what moves them closer to contacting someone for help
what communication actually supports them
how overwhelmed they feel
and what they wish organisations understood
The findings provide a rare, real-world snapshot of caregiver decision-making.
Key Findings (Executive Summary)
1. Trust increased significantly
83% said that receiving simple, supportive Alzheimer’s guidance would increase their trust in the organisation who sent it.
2. Support moves families closer to contacting a professional
93% said the guidance would move them closer to reaching out for help.
3. Families value clear, calm information
88% found the guidance helpful or neutral — an exceptionally high acceptance rate for Alzheimer’s content.
And one caregiver quote captured the emotional impact better than any statistic:
“It addressed the biggest issue I experienced — overwhelm and not knowing where to turn.”
If you’d like to see how this kind of Alzheimer’s support would look with your branding:
(Or reply “sample” to your email.)
Full Case Study (Detailed Breakdown)
Introduction
Caring for a loved one with Alzheimer’s or dementia is emotionally exhausting, isolating, and confusing. Families often experience:
overwhelm
decision fatigue
fear of making the wrong choice
confusion about next steps
lack of trusted information
a sense of being completely alone
Despite this, very few organisations provide calm, supportive Alzheimer’s guidance to families early — even though this is the stage that most influences who the family ultimately chooses to work with.
To understand what caregivers truly value, All About Alzheimer’s conducted a study with 515 caregivers.
The results are clear, consistent, and highly relevant to any professional working with Alzheimer’s families.
1. Trust Increases When Families Receive Alzheimer’s Guidance
83% of caregivers said the guidance increased their trust in the organisation who provided it.
Breakdown:
34% — Yes, definitely
49% — Yes, I think so
12% — Not sure
5% — No
This means trust is extremely responsive to simple, supportive communication.
Caregiver quote:
“The information was honest and straightforward — no mincing of words.”
Caregiver quote:
“Credible information.”
Caregiver quote:
“Someone is actually trying to help me.”
2. Guidance Moves Families Closer to Contact
93% said it would move them closer to contacting the organisation who sent it.
Breakdown:
51% — Yes
42% — Maybe
7% — No
This is one of the strongest indicators of how powerful early guidance is in the decision-making process.
Caregiver quote:
“It addressed the biggest issue I experienced — overwhelm and not knowing where to turn.”
Caregiver quote:
“Reading it helps me feel I’m not alone.”
Caregiver quote:
“It gives insight into what to look for and what to expect.”
3. Families Find the Content Helpful or Neutral
88% rated the guidance as helpful or neutral.
Breakdown:
30% — Very helpful
30% — Helpful
28% — Neutral
12% — Not helpful
In Alzheimer’s communication, neutrality still signals acceptance.
Negativity is what matters — and here it’s extremely low.
Caregiver quote:
“The information was quick and accurate.”
Caregiver quote:
“It drew my attention to matters I hadn’t considered.”
Caregiver quote:
“The writing was spot on.”
4. Families Want Regular Support (Weekly or Fortnightly)
4. Families Want Regular Support (Weekly or Fortnightly)
61% want weekly updates.
30% prefer fortnightly or monthly.
9% said they didn’t want email support.
This gives organisations flexibility to choose the rhythm that fits their families.
Caregiver quote:
“It’s concise and reassuring.”
Caregiver quote:
“It helps with awareness and not feeling like you’re imagining things.”
5. Emotional Impact: Families Feel Less Alone
Across 515 responses, a strong theme emerged:
“Knowing someone else has walked in your shoes.”
“It helps me understand I’m not crazy.”
“They understand the stress of caregiving.”
This is the heart of Alzheimer’s relationship-building.
Families don’t just need information — they need understanding.
What This Means for Professionals
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✔ Families trust the organisation that gives them supportive Alzheimer’s guidance early.
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✔ That organisation becomes the “safe choice” when a decision must be made.
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✔ Regular communication keeps the provider top-of-mind for months.
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✔ Calm, clear content reduces overwhelm — the #1 emotion blocking families from taking action.
For elder law firms, homecare agencies, care home operators, and senior living communities, this research strongly supports a simple idea:
Understanding first.
Decision second.
You don’t need to sell families.
You need to guide them.
Request a Branded Sample Pack
Request a Branded Sample Pack
If you’d like to see exactly how this Alzheimer’s support would look with your branding, we can prepare a sample for you.
(Or reply “sample” to the email you received.)
The sample includes:
Your branded chapter preview
A weekly caregiver email example
A short outline of how the system works
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