When Do You Tell People You Have Alzheimer’s?
Thanks to medical advances, it’s now possible to detect Alzheimer’s much earlier than before. But this progress brings a new and deeply personal challenge: when, and how, do you tell others?
There’s no easy answer. Sharing a diagnosis of Alzheimer’s can feel overwhelming. You may worry about how people will react, whether they’ll treat you differently, or how your life will change. These are all valid concerns. And while there’s no one-size-fits-all solution, there are some helpful principles that can guide you through this difficult decision.
First Things First: A Clear Diagnosis
Before sharing your news, it’s important to have a confirmed diagnosis based on expert evaluation. Alzheimer’s can share symptoms with other conditions, so clarity and accuracy are key.
Choosing the Right Time and People
There are no fixed rules about when to tell others, but timing and audience matter. Think about whether sharing your diagnosis will help you feel more supported, understood, and empowered. You don’t need to tell everyone at once. Start with the people closest to you- the ones who will walk this journey with you.
And remember, how you explain things will vary depending on who you’re talking to. Teenage children may need a different kind of conversation than close friends or work colleagues.
Keep It Focused on the Present
When you do tell someone, speak about your current experience- not the long-term future. Alzheimer’s is a journey, and right now, you’re still you. This helps keep the conversation grounded and reduces fear for both you and the person you’re speaking to.
Be Ready to Explain It
It can be helpful to practise how you want to explain your diagnosis, especially if people aren’t familiar with early-stage Alzheimer’s. Being able to talk about it clearly can help others understand- and reduce misunderstandings or assumptions.
Talking to Your Employer
Disclosing Alzheimer’s at work can be especially challenging. Employers may worry about your safety or their legal responsibilities. Consider what’s necessary to share, what support you need, and whether any reasonable adjustments might help you continue doing your job.
If You’re the One Hearing the News
Being on the receiving end of this kind of news can be difficult too. If someone tells you they have Alzheimer’s, here are a few important things to keep in mind:
Listen. This moment is about them, not you.
Don’t try to explain it or offer your theories. Leave that to medical professionals.
Focus on what they can still do. Don’t define them by their diagnosis.
Treat them the same. They’re still the person you know and love—don’t pull away.
Ask how you can help. Sometimes just showing up is enough.
